Friday, October 19, 2012

Transcript October 18 Darline Turner-Lee


drkdhoffman Good Evening everyone! #hchlitss is beginning now! #hchlitss

rv_rikard        @drkdhoffman Doing alright this evening :) and you? #hchlitss


rv_rikard        @mamasonbedrest - we'll keep the light on for you! :) #hchlitss


rv_rikard        RT @drkdhoffman: Good Evening everyone! #hchlitss is beginning now! <== WOOT! #hchlitss


drkdhoffman Welcome to our guest Darline Turner-Lee @mamasonbedrest#hchlitss


rv_rikard        Good evening all! Welcome to the #hchlitss tweet chat!! We ask that folks introduce themselves (even wall flowers and lurkers) #hchlitss


drkdhoffman @rv_rikard I'm a-okay and ready for some serious tweeting! #hchlitss


drkdhoffman Our topic tonight is Women& Health...this is a new way of thinking of Women's health...it's about acknowledging women's role #hchlitss


drkdhoffman Women and Health acknowledges women's role in health care...from family decision maker to practitioner to patient. A new #hchlitss


mamasonbedrest    Okay, I'm back. last minute homework check. Sorry for the delay!! #hchlitss


rv_rikard        MT @drkdhoffman: Our tpc 2night is Women&Hlth...this is a new way of thinking of Womens hlth...its about acknowledging womens role #hchlitss


drkdhoffman direction being led by Harvard's School of Public Health. We hope to have more chats on this theme as this year proceeds. #hchlitss


rv_rikard        @mamasonbedrest No delay at all! :) #hchlitss


drkdhoffman Our first guest is @mamasonbedrest who is an advocate and practitioner dealing with women and pregnancy #hchlitss


rv_rikard        Folks, we ask that folks introduce themselves before we begin the chat (even wall flowers and lurkers) :) #hchlitss


mamasonbedrest    Harvard is doing some VERY interesting work in this area. Looking to have more of a hand in it myself! #hchlitss


rv_rikard        RT @mamasonbedrest: Harvard is doing some VERY interesting work in this area. Looking to have more of a hand in it myself! #hchlitss


drkdhoffman RT @rv_rikard: Folks, we ask that folks introduce themselves before we begin the chat (even wall flowers and lurkers) :) <=PLEASE #hchlitss


mamasonbedrest    Darline Turner-Lee, Women's health advocate, high risk pregnancy, bed rest support. #hchlitss


drkdhoffman Kathleen Hoffman, communications and health, health disparities, social media and health literacy...here to co-host w/@rv_rikard #hchlitss


drkdhoffman Welcome @mamasonbedrest Darline Turner-Lee...glad to see you! #hchlitss


rv_rikard        RV Rikard co-host w/ @drkdhoffman and honored to have @mamasonbedrest with us! #hchlitss


rv_rikard        Darline Turner-Lee @mamasonbedrest http://t.co/7r5KWthU #Women & #Health #hchlitss tweet chat!!


drkdhoffman Why don't we get started w/our questions.We're going to start w/abasic questions Q1:Why are women put on bedrest during pregnancy? #hchlitss


mamasonbedrest    Glad 2B here. So glad to share that MDs & researchers r finally looking @disparities in maternal/infant mortality in US. #hchlitss


rv_rikard        MT @drkdhoffman: Q1:Why are women put on bedrest during pregnancy? #hchlitss


mamasonbedrest    Bedrest is Rx'd to prevent preterm birth. Common causes; pre-eclampsia, cervical insufficiency, preterm labor, multiples. #hchlitss


drkdhoffman MT @mamasonbedrest So glad to share that MDs & researchers r finally looking @disparities in maternal/infant mortality in US.<=YES #hchlitss


mamasonbedrest    Of course there are other reasons, but those account for the vast majority of bed rest prescriptions. #hchlitss


drkdhoffman MT @mamasonbedrest:Bedrest is Rxd 2 prevent preterm birth.Reasons; pre-eclampsia, cervicl insufficiency, preterm labor, multiples. #hchlitss


drkdhoffman Is the bedrest prescription common? #hchlitss


rv_rikard        @mamasonbedrest which sociodemographic groups are less likely to use/take bedrest? #hchlitss


mamasonbedrest    The Bedrest Rx is far more common than most people know. Each yr about 750K to 1milion women Rx'd bed rest during pregnancy. #hchlitss


anetto            Sorry to be late. I can see that some groups would be unable to use/take bedrest option easily or at all #hchlitss
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mamasonbedrest    Bedrest is non-descript in that the complications causing it are not reserved for one group or another. #hchlitss


rv_rikard        Welcome @anetto - you aren't late! :) #hchlitss


drkdhoffman MT@mamasonbedrest:Bedrest Rx is more common than most pple know.Each yr about 750K 2 1milion women Rxd bed rest during preg.<= WOW #hchlitss


drkdhoffman Welcome @anetto...really great to see you tonight! #hchlitss


mamasonbedrest    The disparity occurs btwn lower income women & women of higher SES. LES women often can't leave their jobs, so don't "comply". #hchlitss


mamasonbedrest    As a consequence, LES women, often minority women, end up with poorer outcomes. #hchlitss


mamasonbedrest    @anetto Hi How are your?? #hchlitss


drkdhoffman MT @mamasonbedrest: Bedrest is non-descript in that complications Rnot reserved 4 1 group or another.<=can happen in any preg? #hchlitss


mamasonbedrest    A big problem is the lack of paid maternity/sick/family leave in the US. In lower paying jobs, if UR out, U don't get paid. #hchlitss
            

rv_rikard        RT @mamasonbedrest The dsprty occrs btwn low inc women & women of high SES. LES wmn often can't lve their jobs, so don't "comply". #hchlitss

rv_rikard        RT @mamasonbedrest: As a consequence, LES women, often minority women, end up with poorer outcomes. #hchlitss


drkdhoffman MT@mamasonbedrest Disparity occurs btwn lower income women & women of higher SES. LES can't leave their jobs, so don't "comply". #hchlitss


mamasonbedrest    For LES women & families, that can be devastating, the difference btwn having a home and being homeless and hungry. #hchlitss


anetto            @mamasonbedrest Great, Patient Partners today. #hchlitss


rv_rikard        MT @mamasonbedrest: In lower paying jobs, if UR out, U dont get paid. #hchlitss


drkdhoffman MT@mamasonbedrest: Big problem is lack of paid maternty/sick/famly leave in US. In lower paying jobs, if UR out, U dont get paid. #hchlitss


anetto            It's awful that they say "comply" like they are disobedient. Not popular word with patients #hchlitss


drkdhoffman MT @mamasonbedrest:4 LES women & families, that can b devastating,the difference btwn having a home and being homeless and hungry. #hchlitss


rv_rikard        @mamasonbedrest Q2: Can you give us some facts and figures on infant mortality and health disparities? #hchlitss


drkdhoffman This sounds like an issue that could use the human rights approach, doesn't it? #hchlitss


mamasonbedrest    Even women n so called "white collar" jobs, if they R unable 2 work, they R @ risk of losing their jobs, their benefits. #hchlitss


drkdhoffman RT @rv_rikard@mamasonbedrest Q2: Can you give us some facts and figures on infant mortality and health disparities? #hchlitss


drkdhoffman MT @mamasonbedrest Even women n so called "white collar" jobs, if they R unable 2 work,they R@ risk of losing their jobs/benefits. #hchlitss


mamasonbedrest    Sadly, The US has some of the highest infant mortality rates in the world; highest amongst industrialized nations & even amongst #hchlitss


rv_rikard        MT @anetto It's awful that they say "comply" like they are disobedient. Not popular word with patients - Not popular with anyone!! #hchlitss


drkdhoffman MT @anetto It's awful that they [health providers] say "comply" like they are disobedient. Not popular word with patients #hchlitss


mamasonbedrest    Some "developing" countries. Also, African American infants are 2-3x more likely to die B4 their 1st Bday than any other group. #hchlitss


drkdhoffman MT @mamasonbedrest:The US has some of the highest infant mort. rates in the world;hi-est among industrialized nations & even among #hchlitss


mamasonbedrest    @rv_rikard So true. It's not an issue of compliance. Women weigh options-provide 4 "living" family or save unborn baby. #hchlitss


mamasonbedrest    @rv_rikard It's a hell of a choice to have to make. #hchlitss


drkdhoffman @mamasonbedrest Some "developing" countries. African Am, infants R 2-3x more likely 2 die B4 their 1st Bday than any other group. #hchlitss


mamasonbedrest    @drkdhoffman This is actually in the US. Our rates compare to those of so called developing nations. #hchlitss
            

rv_rikard        If anyone has just joined the chat we ask that you introduce yourself :) #hchlitss
            

rv_rikard        MT @mamasonbedrest@rv_rikard Its a hell of a choice to have to make. <== an *unequal* choice to make! #hchlitss
            

drkdhoffman MT @mamasonbedrest Women weigh options-provide 4 "living" family or save unborn baby. It's a hell of a choice to have to make. #hchlitss
            

mamasonbedrest    @rv_rikard Precisely. How does one make such a choice?? UR damned either way! #hchlitss
            

rv_rikard        RT @mamasonbedrest@rv_rikard Precisely. How does one make such a choice?? UR damned either way! #hchlitss
            

anetto            The percentage of people who feel they should help their neighbour is going down in some political surveys. recently in NY Times #hchlitss
            

mamasonbedrest    @rv_rikard It infuriates me 2 hear media, politicians speak of such instances as if women want 2 work & endanger their babies. #hchlitss
            

drkdhoffman @mamasonbedrest I know we've started on this but here's Q3:What are some of the issues working women who are put on bedrest face? #hchlitss
            

drkdhoffman MT @anetto: The %of people who feel they should help their neighbour is going down in some political surveys. recently in NY Times #hchlitss
            

drkdhoffman MT@mamasonbedrest:It infuriates me 2 hear media,politicos speak of such instances as if women want 2 work & endanger their babies. #hchlitss
            

mamasonbedrest    @anetto The conservative viewpoint is "everyman for himself", "pull yourself up by your bootstraps". This just isn't feasible. #hchlitss
            

mamasonbedrest    The Family Medical Leave Act, FMLA, only provides protection 4 12 weeks unpaid leave w/job guarantee. After that.,,,? #hchlitss
            

drkdhoffman A horrible dilemma to face--food and livelihood versus their unborn child #hchlitss
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katellington  Ok! RT @rv_rikard: RT @drkdhoffman: Good Evening everyone! #hchlitss is beginning now! <== WOOT! #hchlitss
            

mamasonbedrest    @drkdhoffman So many women go on bed rest at 18-20wks (especially 4 cervical insufficiency). So many lose their jobs, income at a #hchlitss
            

mamasonbedrest    @drkdhoffman time when they need both the most. #hchlitss
            

anetto            NY Times Column by Nick Kristof: Scott's Story http://t.co/gsqSpMiJ... #hchlitss
            

rv_rikard        Welcome @katellington - thank you for joining in! #hchlitss
            

drkdhoffman MT@mamasonbedrest @anetto Conservative viewpt is "everyman 4 himself","pull yourself up by your bootstrps". just isn't feasible. #hchlitss
            

drkdhoffman MT @mamasonbedrest: So many women go on bed rest at 18-20wks (esp.4 cervical insufficiency). So many lose their jobs, income at a #hchlitss
            

drkdhoffman Great to see you @katellington! thanks for being here! #hchlitss
            

katellington  Many women go on bed rest at 18-20wks (especially 4 cervical insufficiency). Many lose their jobs, income #hchlitss MT @mamasonbedrest #sdoh
            

mamasonbedrest    RT @anetto: NY Times Column by Nick Kristof: Scotts Story http://t.co/suIgOoYY... #hchlitss
            

anetto            I didn't realize bedrest was a contentious issue. It sounds so sane #hchlitss
            

drkdhoffman MT@mamasonbedrest TheFamily Medical Leave Act, FMLA, only provides protection 4 12 weeks unpaid leave w/job guarantee. After that? #hchlitss
            

mamasonbedrest    @anetto Part of the contention comes from the lack of evidence that bedrest actually prolongs pregnancy. #hchlitss
            

            

drkdhoffman MT@anetto:I didnt realize bedrest was a contentious issue.It sounds so sane<=Makes U wonder if MDs R aware of what it means 4 some #hchlitss
            

drkdhoffman RT @mamasonbedrest@anetto Part of the contention comes from the lack of evidence that bedrest actually prolongs pregnancy. #hchlitss
            

rv_rikard        @mamasonbedrest Q4: Are there alternatives to being placed on bedrest? #hchlitss
            

mamasonbedrest    @anetto When women face employment issues they think "Well, if it's not really going 2 help" But there's gr8 risk n that thinking. #hchlitss
            

anetto            @mamasonbedrest Well they can't do a controlled trial of that! #hchlitss
            

katellington  Research/clinicians differ as do patients needs for bedrest #hchlitss
            

drkdhoffman RT @rv_rikard@mamasonbedrest Q4: Are there alternatives to being placed on bedrest?<=since lack of evidence #hchlitss
            

mamasonbedrest    The alternatives 2 bed rest R2 treat issues acutely then monitor. But our litigating society has kept bedrest in the mix. #hchlitss
            

mamasonbedrest    Jennie Joseph, CPM has found that early prenatal care, addressing women's Q's & education lowers risks better than bedrest. #hchlitss
            

mamasonbedrest    She's fighting an uphill battle. OB's don't want 2 start prenatal care B4 8-12 wks & n some cases, problems have already started. #hchlitss
            

drkdhoffman RT @mamasonbedrest: Alternatives 2 bedrest R2 treat issues acutely-monitor.<==request 4 plain language explanation please :) . #hchlitss
            

drkdhoffman MT @mamasonbedrest: Jennie Joseph, CPM has found that early prenatal care, addressing Qs & ed. lowers risks better than bedrest. #hchlitss
            

mamasonbedrest    Example, if a woman has preterm labor, treat the contractions, stabilize, release. OB's 2 keep on bed rest. Not proven effective. #hchlitss
            

mamasonbedrest    But the reality is that if that woman is released and loses the baby, that OB can kiss his/her career good-bye. #hchlitss
            

mamasonbedrest    We don't really know which woman was "stable" and which would have miscarried anyway. How can you litigate what may be nature? #hchlitss
            

drkdhoffman @mamasonbedrest Why would OB's be unwilling 2 start pre-natal care earlier?...seems like an opportunity 4 more services/& payment #hchlitss
            

mamasonbedrest    1st, bcuz ins reimbursement is so poor. Most policies only cover a certain # of OB visits. OB's opt 2 save them 4 later. #hchlitss
            

drkdhoffman @mamasonbedrest Q5: Can you discuss some of your advocacy work for women on bedrest? Do you do legislative advocacy? #hchlitss
            

mamasonbedrest    Jennie has found that providing more visits at the top half of pregnancy reduces the need 4 visits at the later stages. #hchlitss
            

rv_rikard        RT @drkdhoffman@mamasonbedrest Q5: Can u discuss some of your advocacy work for women on bedrest? Do u do legislative advocacy? #hchlitss
            

mamasonbedrest    I don't personally legislate, I'm just one person. But I do support the work of MomsRising, MotherWoman, WorkingWoman & others. #hchlitss
            

drkdhoffman MT @mamasonbedrest:1st ins reimbursemnt is poor.Most policies only cover a certain # of OB visits.OBs opt 2 save them 4 later. #hchlitss
            

drkdhoffman MT @mamasonbedrest: Jennie has found that providing more visits at 1st half of preg. reduces need 4 visits at the later stages. #hchlitss
            

mamasonbedrest    Often these organizations need 2 spread the word & I always help by posting 2 my followers, blogging, etc... #hchlitss
            

katellington  Preconception care and improvements in women's health support better birth outcomes. Prenatal care is too late. #hchlitss
            

mamasonbedrest    The National Partnership of Women & Families (NPWF) is really pushing 4 national paid family leave, so doing my best to support. #hchlitss
            

mamasonbedrest    @katellington U've hit the nail on the head. Jennie's found that starting prenatal care @ 6 wks lowers maternal/infant morbidity. #hchlitss
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drkdhoffman MT@katellington:Preconceptioncare &improvm'ts in womens hlth support betternoutcomes.Prenatal is 2late<=need 2 address disparities #hchlitss
            

rv_rikard        RT @mamasonbedrest: The Ntnl Partnership of Wmn & Families (NPWF) is really pushing 4 ntnl pd family lve, so dng my best 2 spprt. #hchlitss
            

drkdhoffman MT@mamasonbedrest: Nat'l Partnership of Women & Families (NPWF) is pushing 4 national paid family leave,so doing my best 2support. #hchlitss
            

katellington  Yes! @NPFW is really pushing 4 national paid family leave, so doing my best to support. HT @mamasonbedrest #hchlitss
            

mamasonbedrest    Several states R advocating 4 paid leave, but 4 ease of understanding & enforcement, a national policy would be best. #hchlitss
            

drkdhoffman MT@mamasonbedrest:Several states R advocating 4 paid leave,but 4 ease of understanding & enforcement, a nat'l policy would b best. #hchlitss
            

rv_rikard        @mamasonbedrest - will the #ACA make any provisions for womens health related to bedrest? #hchlitss
            

drkdhoffman It is approaching 9pm ET, @mamasonbedrest Do you have any final thoughts? #hchlitss
            

rv_rikard        RT @katellington: Yes! @NPFW is really pushing 4 national paid family leave, so doing my best to support. HT @mamasonbedrest #hchlitss
            

drkdhoffman RT @rv_rikard@mamasonbedrest - will the #ACA make any provisions for womens health related to bedrest? #hchlitss
            

mamasonbedrest    @anetto, can you resend Scott's Story link. I couldn't capture it. #hchlitss
            

drkdhoffman RT @katellington: Yes! @NPFW is really pushing 4 national paid family leave, so doing my best to support. HT @mamasonbedrest #hchlitss
            

mamasonbedrest    Bedrest remains complicated & controversial. 4now, its all we've got. Thankfully, there is more research happening & people #hchlitss
            

mamasonbedrest    getting involved. I think that eventually, all our efforts will coalesce & we'll find a workable solution. #hchlitss
            

drkdhoffman MT @mamasonbedrest: Bedrest remains complicated & controversial. 4now, its all weve got. #hchlitss
            

katellington  Yes! @NPWF is really pushing 4 national paid family leave, so doing my best to support. HT @mamasonbedrest #hchlitss
            

mamasonbedrest    @rv_rikard #ACA will make availability better, but if women can't get to OB's or if they live n an underserved area, still hard. #hchlitss
            

drkdhoffman MT @mamasonbedrest Thankfully, there is more research happening on bedrest & people getting involved. #hchlitss
            

mamasonbedrest    High risk pregnancy is really complicated bcuz the complication itself raises so many other issues; social, financial, jobs... #hchlitss
            

drkdhoffman MT @mamasonbedrest@rv_rikard #ACA will make availability of bedrest better, but if women cant get 2 OBs, still hard. #hchlitss
            

drkdhoffman MT @mamasonbedrest: Hi risk pregnancy is complicated bcuz the complication itself raises so many issues; social, financial, jobs.. #hchlitss
            

anetto            Here's the link http://t.co/50ku7Y4I @mamasonbedrest #hchlitss
            

mamasonbedrest    In some respects, the pregnancy issue is the least of the issues. Healthcare delivery, access, availability all come into play. #hchlitss
            

rv_rikard        Y'all we are approaching 9 pm ET -- @mamasonbedrest thank you for being our guest! :) #hchlitss
            

katellington  #ACA opens more comprehensive primary care and prevention to address full range of maternal care #hchlitss
            

mamasonbedrest    Thx 4 giving me an opportunity to share my passion!! #hchlitss
            

katellington  #ACA opens more comprehensive primary care and prevention to address full range of maternal care needs #hchlitss
            

drkdhoffman MT@mamasonbedrest:In some respects, preg. issue is least of issues. Healthcare delivery,access,availability all come into play. #hchlitss
            

drkdhoffman RT @rv_rikard: Yall we are approaching 9 pm ET -- @mamasonbedrest thank you for being our guest! :) <==Thank you so much! #hchlitss
            

            

drkdhoffman MT @mamasonbedrest: Thx 4 giving me an opportunity to share my passion!!<=it is our honor and pleasure! #hchlitss
            

rv_rikard        Folks - thank you for being part of the chat tonight! A transcript will be posted at http://t.co/bRBOMP53 #hchlitss
            

mamasonbedrest    @katellington precisely. We're going to have to look at prenatal care, childbearing, etc..differently, change the paradigm. #hchlitss
            

mamasonbedrest    Thanks everyone!! #hchlitss
            

drkdhoffman Thank you all participants and lurkers for being here tonight! Next week, both RV and I have conferences so we will be back Nov 1 #hchlitss
            

rv_rikard        We will not have the #hchlitss next week AND we will be back on November 1st! #hchlitss
            

rv_rikard        Good night all and many thanks to my co-host @drkdhoffman #hchlitss
            

drkdhoffman #hchlitss will be back Nov. 1 with Josh Glasser on Global population movement/global warming and health impacts #hchlitss
            

mamasonbedrest    I'm going to be traveling nearly every week in November, so I may be hit or miss, but will chime in when I can! #hchlitss
            

anetto            Very interesting chat tonight. Thanks @mamasonbedrest @drkhoffman @rv_rickard @katellington #hchlitss
            

drkdhoffman MT @mamasonbedrest@katellington Were going 2have to look at prenatal care, childbearing, etc..differently, change the paradigm. #hchlitss
            

drkdhoffman Thanks to all our participants our guest @mamasonbedrest and to my co-host @rv_rikard Good night & see you Nov. 1 @8pm ET 4 #hchlitss